July 23, 2017

LuellatwoWe are almost halfway through our summer here in Manitoba and the nights are getting noticeably longer.  My wish to spend this summer at the lake is turning out to be just a pipe dream.

My cataract surgery took place on May 16th, 2017.  It was quick and pain free.  It is such a pleasure to read again without experiencing an overwhelming fatigue.

We flew to Boston on June 23rd to visit son and daughter in law in their new home.  They moved from Seattle to Boston in March.  The west coast is really quite different then the east coast.

My family doctor is leaving her practice and moving to another city as of July 31st. Thankfully she has made arrangements for me to become a patient of another doctor.  The doctor shortage in Manitoba is becoming rather ridiculous.  Surely we could allow more students into medical school to prevent such a shortage.  However the almighty dollar is always the bottom line.

My feet and lower legs are terribly discoloured and I finally had some tests done to try to figure out the cause.  Thankfully there is not a problem with circulation or blood clots. However I would really like to know the cause.  It looks awful.

I finally got rid of the overwhelming fatigue I experienced before my cataract surgery only to have it return when I started taking medication for Rosacea.  Rosacea (row-zay-sha) is a common, chronic, inflammatory skin condition causing redness on the face and for some, small red bumps and pimples.  The causes of rosacea are unknown but it is thought that a faulty immune system could be involved.

My problem these days seems to be writer’s block.  Will write more soon.

 

 

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March 27, 2017

An overcast day today which suits me just fine.  If I am honest I would have to admit that I prefer overcast days to sunny ones.

We were fortunate that last Saturday morning, Brian , the floor guy,  was able to rip out and dispose of our basement carpeting and underlay.  If you read my last two posts you will know that we had a flood disaster in our basement the weekend of March 18th.  Thankfully the wet carpet was disposed of before it started to smell.

On Monday March 20th we went out to shop for new flooring to put in the basement.  We decided on a somewhat new product; vinyl.  It looks like hardwood and even though it is put right on the concrete basement floor it has a bounce to it.  Actually it is a very nice product.   It is also water proof and in case of water damage the planks can be lifted off the floor to dry out. Now I will have to organize the basement and hopefully get new furniture.  Whether the furniture bit will happen is any body’s guess.

I am somewhat concerned about some of the symptoms that have gotten worse or new     ones that have popped up.  As you probably know I have been diagnosed with cirrhosis of the liver.  CT scans and blood work every six months are very important.  Cirrhosis of the liver can lead to liver cancer which we all know is a death sentence.  I still find the diagnosis of cirrhosis hard to believe since I do not drink alcoholic beverages.  One thing I cannot abide is drinking an alcoholic beverage since they give me migraine headaches from hell.

According to the Mayo Clinic and I quote,  “a wide range of diseases and conditions can damage the liver and lead to cirrhosis.”  The most common causes are:

  • Chronic alcohol abuse
  • Chronic viral hepatitis (hepatitis B and C)
  • Fat accumulating in the liver (nonalcoholic fatty liver disease)
  • Iron buildup in the body (hemochromatosis
  • Poorly formed bile ducts (biliary atresia)
  • Inherited disorders of sugar metabolism (galactosemia or glycogen storage disease)
  • Genetic digestive disorder (Alagille syndrome)
  • Liver disease caused by your body’s immune system (autoimmune hepatitis)
  • Destruction of the bile ducts (primary biliary cirrhosis)
  • Hardening and scarring of the bile ducts (primary sclerosing cholangitis)
  • Infection such schistosomiasis
  • Medications such as methotrexate

The likely causes for my cirrhosis of the liver would be autoimmune hepatitis or/and fatty liver.  Sadly, having one autoimmune disease usually leads to more.  Becoming a Beluga whale after the powers that be destroyed my thyroid with Radio Active Iodine certainly played a part in my developing a fatty liver.  Oh to be able to turn back the clock.   If I could go back in time I would not allow any one of those space cadets in their space suits to come near me with that lethal drink in a lead cup.  If I could do it over again surgery would be my choice of treatment.  I can not reiterate the following often enough; do not choose Radio Active Iodine.

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March 17, 2017

computerhackerAnd I thought yesterday was a miserable day. As I mentioned in yesterday’s post it had rained; rained a lot. I went down the basement last night around 10:00 PM to sort out some of the pictures that need reframing. Went to bed around midnight. Woke up at 5:00 AM, made a cup of coffee and hobbled back downstairs to finish up the project started yesterday. You can imagine my shock when I reached the last stair and stepped into 2 inches of ice cold water. The good news is that the shock cleared the cobwebs from my brain; at least for a short period of time. The bad news is that the basement floor is covered with 2 inches of water. The idiot who invented window wells should be locked up. Not only is the ground frozen solid but so are the drainage pipes in the window wells which leaves the water only one way to drain and that is into the basement. Peter managed to get the pipe in the window well to drain by removing as much ice as possible and pouring car window washer fluid down the pipe. At least that has stopped the water fall coming from the window. Now we wait for the clean up crew and the insurance adjuster. Isn’t life grand?

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March 16, 2017

computerhackerIt is raining outside; has been for the better part of the afternoon. Every bone in my body feels like I have been run over by a truck and I feel a rant coming on. After my doctor’s appointment today, I am ready to believe that I might be heading towards insanity. After all Albert Einstein is broadly credited with exclaiming “The definition of insanity is doing the same thing over and over again, but expecting different results”. I have decided that a favourite pastime of doctors is to see how far they can push women like me. We are easy prey! They see a 60 something woman walk into their consultation room and they think, “How crazy can we make this one before she stops seeing me?” According to the doctors I have seen the fact that I am 60 something years of age determines immediately that my symptoms are either hysterical or menopausal. They are the crazy ones if they think that after 60 years of living my goal in life is to become “hysterical”.Finally received two appointments in the mail today for my eye surgery.  the pre-surgery appointment with the surgeon is scheduled for April 20th.  The actual Cataract surgery on my right eye is scheduled for May 16th.  If I sound a tad impatient; it has been 2 1/2 years since I was told by my optometrist that I needed emergency surgery on my right eye .  Actually that particular eye exam was rather frightening.  For someone who had always had 20/20 vision it came as a terrible shock to realize that when I covered my left eye I could not read the largest letters on the eye chart.   Since when does emergency surgery mean a waiting period of 2 1/2 years?  Hopefully once I have recovered from eye surgery I will be able to once again enjoy reading.  At this point I can no longer read more than 2 hours at a time.  My eyes just get too tired.

 

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March 5, 2017

Another day of extreme fatigue.  Will I ever get enough sleep to beat this overwhelming fatigue?   Thankfully I am able to hibernate at home without any obligations except for the occasional doctor’s appointment.

This week I hope to finish copying my mini DV’s onto my computer.  It is really quite annoying how quickly electronic devices become obsolete.  So far I have managed to copy 31 mini cassettes.  This past summer and fall I began the huge task of scanning just over 6000 slides onto my computer.  It was a tedious project but so glad it is complete.

I need to decide what I want to do with all my genealogy information.  Many years ago I attempted to put together a comprehensive genealogy of the Helena Zacharias Giesbrecht family as well as the  Helena Ens Martens family.  I am debating whether to leave it where it is; packed away in the storage room downstairs or to put it out on the internet.  I had hoped to recover some of my expenses but that seems to be a pipe dream.  Oh many are interested; interested in a free genealogy.  In fact a number of years ago I had a cousin ask me why in the world I was working on the family genealogy when in fact I was adopted and it was not really my family.   Oh well life goes on.

Maybe I will be in a better mood in the next couple of days.  I hate myself when I feel like this.

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March 4th, 2017

A quiet Saturday afternoon with temps about 3 C.  However there is a snow storm in the works for Monday and Tuesday.

Life takes many twists and turns and we can never be sure what will happen next.  This past summer I dealt with Pancreatitis; a real nasty disease.  I woke up on July 10th feeling tired.  By midmorning I had the most horrible pain in my abdomen.  Finally at 3:00 PM I could stand the pain no longer and had my husband take me to emergency.  Thankfully I only had to wait an hour before I was seen by the emergency doctor.  However he and his side kick the male nurse on duty informed me after some blood work that I was FOS.  According to my RN relatives that is what is noted in the chart of a person with constipation.  Nothing helped the pain and I was held in observation overnight.

My family doctor arrived at the hospital early Monday morning and apologized for the lack of pain control I had received in emergency.  She very quickly fixed that problem.  I was also informed at that time that I had Pancreatitis and would have to remain in hospital.  Apparently my pancreatitis was brought on by a stone from the my gall bladder blocking the duct to the pancreas.  After 12 days of nothing to eat or drink, two ambulance rides to Winnipeg for MRI’s I was finally released after almost 3 weeks.  I had gall bladder surgery in Winnipeg on September 9th.

The best outcome of all of this was that I suddenly began to loose weight, something that I thought was no longer possible.  At present I have lost 45 lbs. Mind you I have been following the pancreas diet published by the Mayo Clinic ever since my surgery.

I have been plagued by cataracts for some time.  Two and half years ago I was told that I would need to have them removed ASAP, especially the one in my right eye.  Well I finally got notification of my surgery date which is to happen in May.  A two and a half year wait is hardly considered an emergency but then what do I know.

The pain in my bones and muscles continues as does the dizziness.  It is so annoying to suddenly feel the loss of balance.  Luckily so far the falls have not done any permanent damage.

Well I shall get back to my reading.  Had a mammogram on Tuesday.  Stopped in at Chapters on the way home and was sorely tempted and could not resist buying too many books.  Oh well I shall have saved my sanity for another few weeks by keeping my nose in my new books.

mammogram

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June 13, 2014

It has been a long time since my last blog entry.   My only excuse is that I have had no motivation to write.   The fatigue has gotten worse again; I take two to three hour afternoon naps so that my evenings are not a total bust.  Oh to sleep eight hours a night.  My two to three hours of sleep at night are just not long enough.

This past spring I discovered You Tube and have spent many an hour watching an interesting mix of vidoes.  Some of the videos are beyond belief, obviously the work of some deranged human beings.

I have however been following this beautiful little 4 year old girl on You Tube. Vienna is adopted and in her case I believe the adoption will be a positive in her life. She has siblings but they are much older than Vienna and also adopted. I use to believe that adoption was always a wonderful option however I have changed my mind in the last few years. Adoptions can become very complicated when biological children and adopted children are part of the same family. Many adopted children who share a family with biological children spend most of their life trying to please.  (I know of what I speak; I am adopted.)

Two weeks ago I had an unexpected visit to the medical clinic.  My arm decided to rebel and the diagnosis was a rotator cuff injury.  For those of you who have never experienced this kind of injury and the pain that comes with it pray that you never will.  Thankfully the wait to see a doctor was only about 15 minutes.  While I was trying to explain my problem to the doctor I noticed that she was paying more attention to my neck than to what I was telling her.   She finally explained why she was so interested in my neck.  Apparently one side is larger than the other.  She ordered blood work and booked a neck and chest CT Scan with dye for June 25th.  It would truly be a miracle if the scan results would explain why I experience such weird symptoms.

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