Please share your story. I am always very grateful when a reader shares his or her story on this site. Each story gives a different perspective on the diagnosis and treatment of an autoimmune disease. Some readers have been fortunate to receive a quick diagnosis while others have waited years for the answer to their question, “What is wrong with me.” Each person’s experience dealing with an autoimmune disease is unique and important. Sharing your experience may help someone in the beginning stages of this convoluted journey with autoimmune disease.
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Categories
My Mental Trampoline
A Blog I Follow: My Mental Trampoline
The Moments That Count
Written September 10, 2010 Last night I went to my grandmother’s bedside, it was late, the room was dimly lit. She lay in her hospital bed, lost amid a jumble of pillows and blankets. She is presently at home in palliative care making her way from this world to the next. She is dying. It […]
The Art of Weird
I come from a generation in which if you were weird you had to make a choice, hide it and blend in, or be out there and don’t look for acceptance. Be strong enough to own your weird, earn your acceptance through sheer force of will. They used to say “don’t dress weird unless you […]
A Trip to the Hospital – What to Pack
When you have finally made the hard decision to go into hospital you may be overwhelmed by your circumstances, emotions, and the tasks you are expected to complete. The best way to cut down on the number of concerns and tasks at hand is to be prepared. If you have a comprehensive list of items […]
How Do I Get To A “Safe” Place?
Getting to an immediate “safe” place may be as easy as dragging yourself step by step out of the room that you are experiencing your crisis in and into a safer place in your home. Make sure you avoid high risk areas like the kitchen, for instance. There are too many things you can harm […]
Trip to the Hospital – Admitting Yourself To Hospital
Now That You Have Realized You Need Help And Have Decided To Admit Yourself into Hospital It is imperative that you make this critical decision before you carry through with any plans to harm yourself or others. Try not to let your crisis get out of hand. It is very important when you are experiencing […]
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Not Over Till The Fat Lady Sings 