February 24, 2002

It is 9:09 in the evening and whatever I have not managed to accomplish today will have to wait until I get back home.  At 10:00 AM tomorrow morning I board my flight to the city in the west where at 2:00 PM I will meet with a new endocrinologist. Because my flight leaves at 10:00 AM, we have to be ready to leave the house at 7:30 AM. I am not a morning person so this will be a traumatic experience for both my husband and me.

My appointment is with a very highly recommended endocrinologist. His secretary told me to plan on staying for four days. I hope this means the endocrinologist plans on doing all the testing that is necessary.

I spent most of the afternoon putting together a binder with my pertinent medical records and test results. Hopefully this will be a help and not a hindrance.

This trip has to have a good outcome. I am counting on this endocrinologist to finally figure out what is wrong with me. It would be much too disappointing to come back home without a diagnosis. I need to get on the road to recovery.

I received the following emails from Dr. Ted Friedman:

“Hi everyone – I’m going to be on CBS news next Wednesday morning, February 27th at 7:45 AM on CBS Morning News. I think it will be on at that time in all time zones, but if there is a question in your time zone, it will be on 45 minutes after the show starts. They will be interviewing me, my patient and the surgeon at Cedars-Sinai about a pituitary disorder called Cushing’s disease. It’s a nice story about a patient who had many signs and symptoms of this disease, but all her laboratory tests were normal. Eventually, I did some new tests on her, which were positive. She went for surgery this weekend and hopefully is cured. This is my first time on national television. Hope everyone can watch.  Ted”

When I emailed him and asked him what tests were done on Camille K. he answered with the following, “her 17OHsteroids in the urine were high, then I did the dex-crh test which was also positive. Hope the doctor can do the tests on you to make the correct diagnosis.”

Dr. Friedman is a caring, compassionate doctor. Whenever I have felt that I have no where to turn, he has always given me the hope that I too will get a diagnosis.

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