February 25, 2002

Today was the big day! We left for the airport at 7:30 AM. My flight left at 10:05 AM arriving in the city in the west at 11:00 AM. (Time Zone change) I checked into my hotel; caught my breath; then headed out to my 2:00 PM appointment with the new endocrinologist.

Quite frankly I still do not have a firm opinion of what happened during this appointment.  Maybe I am so jaded at this point that I cannot tell the difference between a half assed hopeful appointment and a disaster.  Maybe I had my hopes too high! Mind you by now I should be smart enough not to allow my hopes to soar before meeting the strange beings in whose care I entrust my health, the completion of an appointment and the results.

After waiting a short time I was called into a consultation room by the new endocrinologist. As soon as I saw his side kick I began to wonder in what direction this appointment would head. The new endocrinologist (I still have not thought of an appropriate name) introduced himself and then introduced his side kick, who just like I thought, was a resident. I flew a thousand miles to be seen by yet another resident! Just remembering that and writing it down makes me mad all over again. You would think that traveling a 1000 miles should at least give you a complete once over by the actual endocrinologist. But no, that is why they have their residents.  I guess I am just a fat old guinea pig for the residents to practice on.

The resident asked numerous questions which I answered to the best of my ability. I had brought along my carefully prepared binder with all my relevant medical documentation inside. I showed the resident my before and after pictures and the look I got was one that suggested he was sarcastically thinking, “Sure lady, I believe you once looked like that.”  I was rather shook up when the resident informed me that he planned to be a psychiatrist. Made me wonder what I was doing there.  Made me wonder if this was actually an interview to get to the bottom of my endocrine problems or an interview to see how nuts I was.  I have learned that you must always be suspect of these medical professionals. Their minds work in very mysterious ways. The resident did an examination of sorts and then left the room to confer with the boss man.

After their conferral, they both came back into the consultation room. The endocrinologist was very vague. He told me he was only interested in Cushing’s and Hyperaldosteronism. The endocrinologist told me he had agreed to see me because of the symptom list I had sent him and because of the referral letter from No Name. Apparently No Name had written in the referral letter that he was concerned that I might have Cushing’s.

The endocrinologist then did a cursory examination. He told me that he had scheduled a Dexamethosone Test at 10:00 AM the next morning at a hospital clear across the city.  I asked the endocrinologist about some of my symptoms but did not get a clear answer. I also mentioned that the sleep doctor had suggested that I be tested for Hyperaldosteronism.  From the endocrinologist’s reply I concluded that he was not interested in testing for Hyperaldosteronism.  I asked him about Insulin Resistance and his reply was that he was sure that I had insulin resistance but that it was not important at this time. At this point the endocrinologist and his side kick ended the appointment and sent me on my way.

I went back to the hotel feeling like the biggest fool in the world.  Here I had spent all this money to go see someone supposedly famous and caring and I felt like it had been a totally useless exercise. This was the first time that I felt that the bottom had really dropped out of my world and I would never get a diagnosis. I felt like I had exercised the last of my options and it had been a complete waste of time.

Later that afternoon my cousin came to pick me up at the hotel. We went to one of the restaurants in the city that my family and I use to frequent when we lived there. We had a lovely visit and I was so grateful to her for distracting me for a couple of hours.

 

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